International network. Founded 1999. Provides support and education
for families of children with Morquio Type A. Helps educate health
care professionals about this lysosomal storage disease. Funds
research. Maintains database of families. Referrals to physicians
and medical information, pen pals, phone support, conferences and
newsletter, online guestbook and helpful links.
Write: Morquio Support Group
PO Box 64184 Tucson, AZ 85728-4184
Voice: 520-744-2531 Fax: 520-744-2535
Website: http://www.morquio.com
E-mail: mbs85705@yahoo.com
Verified: 10/9/2008
National. Founded 1974. Provides support and hope for individuals
with mucopolysaccharidoses or mucolipidoses (and their families)
through research, advocacy, public education and parent referral
service for support networking.
Write: National MPS Society
4220 NC Highway 55, Suite 140 Durham, NC 27713
Voice: 919-806-0101
Website: http://www.mpssociety.org
E-mail: info@mpssociety.org
Verified: 10/8/2008
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